NCJ Number
254712
Date Published
2017
Length
44 pages
Annotation
Since having a voluntary registry system of individuals with Alzheimer's disease could substantially reduce the time, personnel, and other resources needed to locate a missing individual with Alzheimer's disease, this guide provides an overview of existing voluntary registry system programs, outlines key considerations for implementing such a system, and provides samples of documentation from programs in various U.S. jurisdictions.
Abstract
By 2050, the total estimated number of persons with Alzheimer's disease is expected to be 13.8 million. Of persons with Alzheimer's disease, approximately 60 percent will wander from their residences at least once during the progression of their disease. Having information already submitted on such persons through a voluntary registry system could substantially reduce the threats to personal safety and cost of searches in such cases. Having registry information would reduce the time and cost of locating such persons. Registry information on the individuals might include the direction in which they tend to wander, a history of past interests or residences that might be in their memories, whether or not they are verbal and able to respond rationally to questions, and a photo of the individual. Voluntary registry systems are also helpful to law enforcement agencies in responding to individuals with other special needs, such as those with autism spectrum disorders, developmental disabilities, attention deficit/hyperactivity disorder, epilepsy, brain injury, mental illness, and other disabilities that are linked to problem behaviors that may lead to interactions with police. After an overview of such systems, this guide provides instruction in key considerations in implementation, challenges in encouraging participation, maintenance, sustainability, and relevant strategic ideas for chief executives. Appended samples of registration applications and marketing/outreach samples