AIDS and Hemophilia: Implications for Interventions With Families

• NCJ Number: 121724
• Journal: Journal of Pediatric Psychology Volume: 14 Issue: 3 Dated: (1989) Pages: 341-355
• Author(s): P J Mason; R A Olson; J G Myers; H C Huszti; M Kenning
• Date Published: 1989
• Length: 15 pages
• Grant Number(s): MCJ-130061-41045
• Sponsoring Agency: US Dept of Health and Human Services
• Publication Format: Article
• Publication Type: Survey
• Language: English
• Country: United States of America

Annotation

A survey of 132 hemophilia patients and family members was conducted to determine their information needs, their preferred source of information, and the patients' knowledge of AIDS.

Abstract

Results indicate the major source of information for the patients was the media; the preferred source was the hemophilia treatment center. Most patients wanted more information about the treatment of AIDS and how to cope with the stresses of AIDS. Although patients indicated they had received sufficient information about the sexual transmission of AIDS, answers to knowledge questions indicated important misconceptions. Although the results strongly suggest the need for additional information about sexual transmission of HIV, they also indicate hemophiliacs do not recognize this need. Consequently, programs emphasizing sexual information will not be widely used by hemophiliacs. Efforts must help hemophiliacs recognize their need for additional information about sexual transmission of the virus before patient education can be effective. 5 tables, 21 references.